Person-centric Research

Advances in Science and Technology enables personalised care (screening, diagnostics, treatment, monitoring and control).
Same personalization and individualization is applicable even to Research, thus enabling Person-centric Research and Care.

Modeling & Design
Considering a person as an Agent, we can use Agent-based Modeling(ABM) to model this system.

Problem Statement:

How can we ensure that patients are getting the best available care – for both treatment and prevention? There is a serious gap between research and practice in many areas of healthcare and public health.

Adoption and adherence of interventions are dependent upon needs and expectations of patients, characteristics of patients and providers, setting or context of care, organizational and system constraints and enablers (such as limited resources in a clinic setting or limited time to spend with patients)

These are all factors that should, yet are not always accounted for when interventions are developed, so that their design can accommodate the realities of patient care.

What can be done – Approach for a Solution:

So how can we impact the translation gap?

1) There needs to be more voices in the research process in order for interventions to be designed that can fit the needs of those who need it most. More often than not, studies fail to address outcomes important to practitioners, patients, caregivers, organizations, and others that stand to benefit from the knowledge.

2) Research should involve collaboration and integration of multiple academic disciplines, as well as non-academics, with a stake in the research and its implications. Surprisingly, it is rare for there to be successful collaborative efforts between academic researchers and community physicians and patients.

3) Finally, research paradigms need a distinct shift. Interventions are often designed for treatment in checked settings, not necessarily designed to fit current practice considerations of a patient’s or a caregiver’s daily life. Hence, it is becoming increasingly standard for research funders to require patient and stakeholder input into research projects.

Benefits of engaging patients and stakeholders in Research:

  • Addition of unique perspectives from patients and stakeholders
    • They offer unique perspectives that often leads to research that is more relevant and translatable
    • They will articulate the outcomes that are most important to them
    • They provide insight on patient decision-making
    • They also provide input on language and cultural issues
  • More effective research implementation
    • Those who participate in the research may have more confidence in the results, leading to higher levels of acceptance and effective implementation of the research
    • Usually with this input, the research process is much more smooth.
      • Example: recruitment and retention may be easier through joint development of a more patient-centered process.
  • Enhanced relevance of research results